Monday, February 22, 2016

Welcome to the Angelman Syndrome Life blog

Rick and Scarlett
Welcome to my Angelman Syndrome Life blog. I am creating this blog, so people can see what life is really like, living with a person who has Angelman Syndrome. 

My daughter Scarlett was born in 2010 and has Angelman Syndrome. When my wife and I received the diagnosis, we started googling her condition and were devastated by what we read. A lot of the info was very doom and gloom. 

Though every day is a struggle, I feel that things aren't as bad as I originally feared. Hopefully by sharing my experiences in caring for a child who has Angelman Syndrome, I can help others facing this same diagnosis. And maybe I will inspire some to donate money to help find a cure.

-R